My arms stopped lifting. My foot started catching. I figured it was an injury. Then a doctor said the phrase “progressive disease” and my life rearranged itself in about ten minutes. I'm guessing your story starts somewhere familiar.
I spent years ignoring it, then years attacking it the wrong way. No real information, no one in my corner who actually understood what I was dealing with, and nowhere honest to look.
FSHD didn't ruin my life. It just made me figure out faster what was actually in it.
This site isn't a nonprofit. It's not selling a supplement. It's not trying to be your doctor. It's me, in my bedroom office, building the thing I needed at twenty-five.
If it helps, great. If it just makes you feel less alone — that's fine too. — Ryan
